A courageous mom – Loey’s-Dietz Syndrome

Jen and tyler

My sister-in-law’s birthday is today. She was over last night with my nephew Tyler and I couldn’t help notice how this child is thriving and it’s all because of Jen, his mother.

You see, Tyler was born with Loey’s-Dietz Syndrome a rare connective tissue disorder. http://en.wikipedia.org/wiki/Loeys–Dietz_syndrome

He has many physical limitations, which he constantly has to overcome. He has had 3 heart surgeries to repair aneurysms and his aortic root and and he isn’t even 3 years old. But yet, he is happy, thriving and content and that’s all because of his special mom.

A week doesn’t go by that Tyler doesn’t have to see some specialist at Sick Kid’s Hospital to check that things are working well. Even something as benign as a common cold, will put Tyler into a breathing crisis.

On this special day, I thought I would write a poem for Jen. I was inspired by another poem I had read, and it made me think of this brave and selfless mom, so I borrowed a little and wrote the rest.

This is for you Jen, on your birthday.

A meeting was held far away from earth,
It’s time again for another birth,
Said the angels to God above,
This special child will need much love.

He’ll need a selfless and special mom,
Full of patience, love and calm.
His progress may seem a little delayed,
But this mom will be a one woman crusade.

Sometimes he’ll take a little longer to get there,
But this mom will never tire or wear.
So let’s be careful where he’s sent,
We want his life to be content.

Your precious Tyler, is so happy and thriving,
Because he has a mother constantly striving,
To make sure he has reaches each goal in life
with lots encouragement and very little strife.

Jen, it was in heaven that your match was made
Tyler and you will conquer all – unafraid.
God sits back to watch – his job is done,
Telling his angels, ”See I told you she was the one!”